Well, I had a lot of hope going into my doctor's appointment today. Unfortunately, I think it was a waste of my time and money. Really, do I need to go to an office, with my kids, just to be told what the GI nurse told me over the phone?

I asked him if he knew about a support group closer to home, and he didn't. I asked him if he knew what I should do about testing my kids, and he said I should only worry about it if they had symptoms (this seems to contradict what I've been reading). He told me I would be an expert on this disease in a short time. I also couldn't believe he didn't have any hand-outs for me or even a list of resources to look into. I told him I had heard the leader of the support group near me was a lab tech in his office-this was news to him!

I left crying at my frustration again. My kids were great (well, not in the office); they asked if I was alright and gave me hugs!

I decided to check out a local grocery store I knew had information on the support group and sold gluten free items. I really don't know how I'm going to afford this, but I don't have the option not to. Even if I make my own pasta and breads, I have to buy the special flour. A 2 1/2 pound bag was over $10 and and 8 oz. box of pasta was over $3! I am going to look into some recipes and see what I need to have in my pantry.